Original HRC document

PDF

Document Type: Final Report

Date: 2018 Apr

Session: 38th Regular Session (2018 Jun)

Agenda Item: Item3: Promotion and protection of all human rights, civil, political, economic, social and cultural rights, including the right to development

GE.18-05613(E)



Human Rights Council Thirty-eighth session

18 June–6 July 2018

Agenda item 3

Promotion and protection of all human rights, civil,

political, economic, social and cultural rights,

including the right to development

Report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health

Note by the Secretariat

The Secretariat has the honour to transmit to the Human Rights Council the report of

the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable

standard of physical and mental health, prepared pursuant to Council resolution 33/9. In the

report, the Special Rapporteur addresses the relationship between the right to health and

specific forms of deprivation of liberty and confinement in penal and medical regimes.

Detention and confinement remain the policy tool preferred by States to promote public

safety, “morals” and public health, doing more harm than good to public health and the

realization of the right to physical and mental health. The Special Rapporteur calls for the

full implementation of the United Nations Standard Minimum Rules for the Treatment of

Prisoners (the Nelson Mandela Rules) and for the development of supportive community-

based services as alternatives to detention and confinement in various cases.

United Nations A/HRC/38/36

Report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health

Contents

Page

I. Introduction ................................................................................................................................... 3

II. The right to health in the context of confinement and deprivation of liberty ............................... 5

A. Intrinsic links, systemic omissions ....................................................................................... 5

B. Right-to-health framework .................................................................................................. 6

III. Relationship between mental health and forced confinement and deprivation of liberty .............. 10

IV. Children deprived of liberty .......................................................................................................... 11

A. Overview .............................................................................................................................. 12

B. Penal institutions ................................................................................................................... 12

V. Women, the right to health, and confinement ............................................................................... 14

A. Addressing the gendered pathways of incarceration ............................................................. 15

B. Conditions of incarceration ................................................................................................... 16

C. Women with disabilities ....................................................................................................... 17

VI. From confinement to community: ending public-health detention ............................................... 17

A. Criminalization as a determinant of the right to health for people living with tuberculosis . 18

B. Community-based care and tuberculosis .............................................................................. 19

VII. Conclusions and recommendations ............................................................................................... 19

I. Introduction

1. In previous reports and country missions, the Special Rapporteur has attempted to

shed light on how exclusion has negatively affected the right to health of those deprived of

basic liberties and freedoms. In the present report, he uses a right-to-health framework to

problematize the global approach to deprivation of liberty and confinement, pointing

towards transformative directions for reform.

2. Given the breadth and scale of these issues, a comprehensive assessment is not

possible within the space constraints of the present report. This is an initial contribution,

focused on some practices where the right to health is a key element in meaningful

assessment and guidance.

3. The report is a synthesis of insights acquired during country missions, literature

reviews and multiple assessments of cases brought to the attention of the Special

Rapporteur through the communications mechanism of the special procedures. The report

was significantly informed and enriched through extensive consultations with a wide range

of stakeholders, including people who have been deprived of their liberty, civil society

representatives, members of the prison abolition movement, public-health experts, the

World Health Organization (WHO) and academic experts. The Special Rapporteur is

grateful for their generous commitment of time, energy and meaningful contributions.

4. Deprivation of liberty is a legally grounded term, and involves severe restriction of

motion within a space that is narrower than that of other forms of interference with liberty

of movement. It should be based on a judicial sentence, and is imposed without free consent.

It is not prohibited per se, but such detention must be lawful and not arbitrary. Deprivation

of liberty takes many forms, including police custody, remand detention, imprisonment

after conviction, house arrest and administrative detention, as well as both involuntary

hospitalization and institutional custody of children resulting from legal proceedings.1

5. Confinement is a term widely used in health and social welfare settings to indicate

the restriction of an individual within a limited area, following medical or social-welfare

advice. It may occur with or without the consent of the person and may include some

generally accepted health-grounded practices, such as those applied in the context of the

recovery period after a woman has given birth.2

6. While some forms of confinement, including retention in hospitals and in psychiatric

and other medical facilities, may constitute de facto deprivation of liberty,3 virtually all

forms of confinement without informed consent represent a violation of the right to health.

7. Around the world, more than 10 million adults are imprisoned in penal settings.4

These statistics fail to capture the global scale of persons restricted in other settings. For

example, it is estimated that at least one million children are being held in other settings,

that half a million adults are in compulsory drug detention and that thousands of women are

being held in hospitals for non-payment of bills. An inestimable number of adults and

children are confined in medical and social institutions, including persons with tuberculosis

who are forcibly isolated for long durations, sometimes in prison-like settings. While the

places of confinement differ, the shared experience of exclusion exposes a common

narrative of deep disadvantage, discrimination, violence and hopelessness.

8. Restrictions on the liberty of movement have emerged in the past two centuries as

the default tool of social control to promote public safety, “morals” and public health. This

has included the detention, on the grounds of behaviour socially labelled as “immoral”, of,

1 See Human Rights Committee, general comment No. 35 (2014) on liberty and security of person,

paras. 3, 5–6 and 10–14; see also E/CN.4/2005/6, para. 54.

2 See Committee on the Elimination of Discrimination against Women, general recommendation No.

24 (1999) on women and health, paras. 2, 8, 22, 26 and 31.

3 See A/HRC/30/37, para. 9.

4 Roy Walmsley, World Prison Population List, 11th ed. (World Prison Brief and Institute for Criminal

Policy Research).

among others, lesbian, gay, bisexual, transgender and intersex persons, rebellious young

persons, drug users and women exercising their right to make choices concerning

pregnancy prevention and termination. Confinement has become an institutional response

to complex social problems, particularly affecting groups and communities left behind by

public and socioeconomic policies. Some argue that prison systems and institutions are

powerful instruments aimed at silencing the opposition or the “other”, through either

criminal sanctions or medical diagnosis and isolation.

9. The latter part of the twentieth century was marked by a rapid increase in rates of

confinement within punitive legal and policy frameworks, including in relation to the drug

trade, that laid the foundation for modern day, fast-track prison pipelines. Rapid

deinstitutionalization in some countries, without corresponding investment in quality

community-based services, occurred in parallel. People living in poverty and/or belonging

to racial and ethnic minorities were caught in a widening punitive net with inadequate

social, economic and legal protections.

10. The 2030 Agenda for Sustainable Development reflects the ambitious aspiration to

end the vicious cycle of hopelessness, violence, exclusion and discrimination by addressing

social inequalities and human rights so that no one, including persons confined or deprived

of their liberty, is left behind.5 There is strong evidence that any form of violence, including

inside prisons and centres of confinement, poses a risk for the full realization of the right to

health.6 Many promising innovations are prioritizing investment in early childhood, healthy

adolescence, competent parenting, good mental health and well-being, gender equality and

the protection of women from violence, giving hope that the world can and will become

less violent and that detention and confinement will decrease substantially.

11. For the first time, the field of mental health, supported by the Convention on the

Rights of Persons with Disabilities other powerful political commitments,7 is on the verge

of freeing itself from a pattern of coercion and institutionalization in mental health settings.

12. Similarly, drug prohibition is increasingly acknowledged as a failed practice that has

devastating consequences in terms of the right to health. A growing number of countries

and municipalities are replacing punitive approaches to the use of drugs with modern

policies based on public health and human rights principles, including decriminalization or

legal regulation of drug markets and scaled-up investments in community-based social and

health-care services, including harm reduction.8 These promising trends give hope that the

practice of mass incarceration of drug users may end.

13. New and stronger international political commitments to reduce incarceration where

appropriate have been established.9 A number of United Nations entities and human rights

mechanisms have called for the immediate closure of all compulsory drug detention centres

and/or movement towards the decriminalization of non-violent drug offences.10 The global

study on children deprived of liberty commissioned by the Secretary-General at the

5 For more on the 2030 Agenda in the context of the right to health, see A/71/304.

6 See, for example, World Health Organization, World Report on Violence and Health (2002).

7 See, for example, Human Rights Council resolution 36/13.

8 United Nations Development Programme, Reflections on Drug Policy and Its Impact on Human

Development: Innovative Approaches (2016).

9 For example, the Doha Declaration on Integrating Crime Prevention and Criminal Justice into the

Wider United Nations Agenda to Address Social and Economic Challenges and to Promote the Rule

of Law at the National and International Levels, and Public Participation.

10 See A/65/255; A/HRC/32/32; joint statement by United Nations entities on compulsory drug

detention and rehabilitation centres, issued in March 2012, available from

www.unodc.org/documents/southeastasiaandpacific//2012/03/drug-detention-

centre/JC2310_Joint_Statement6March12FINAL_En.pdf; joint United Nations statement on ending

discrimination in health-care settings, issued in July 2017, available from

www.unaids.org/sites/default/files/media_asset/ending-discrimination-healthcare-settings_en.pdf;

“Tackling the world drug problem: UN experts urge States to adopt human rights approach”, press

release, available from www.ohchr.org/en/NewsEvents/Pages/DisplayNews.aspx?NewsID=

19833&LangID=E.

invitation of the General Assembly holds much promise in terms of elevating the movement

towards ending children’s imprisonment.

14. On the other hand, there are many signs of increases in the use of confinement for

minor offences and as the default response to problems relating to public safety, social

order, immigration, political opposition or “morality”. In some cases, punitive responses are

applied disproportionately to address violence or radical extremism among young people.

Growing numbers of women are being incarcerated, with a worrying number detained for

choices regarding their reproductive health rights. The warehousing of refugees and

migrants seeking safety and refuge remains a critical challenge.

15. Improving the conditions of the daily existence of the millions held in locked cells

and wards and radically reducing the rates of such imprisonment remain of paramount

importance. Equally important is the forging of efforts to fortify and transform communities

to support reintegration, inclusive education, socioeconomic empowerment and well-being

and, hence, the meaningful fulfilment of the right to the highest attainable standard of

mental and physical health.

16. We are at a crucial point in terms of influencing how we conclude this decade and

shape the next as regards ending the cultural dependence on confinement and incarceration.

II. The right to health in the context of confinement and deprivation of liberty

A. Intrinsic links, systemic omissions

17. Ensuring dignity by protecting the right to health has been an objective of prison

reform legislation and advocacy since the earliest days of the modern prison. The current

structures of confinement produce a vast geography of pain that transcends borders,

resource settings and political systems. This is intimately linked to the right to health and

well-being, not only of those deprived of liberty and confined, but also of communities,

families, children and future generations. It is vital to consider the cyclical and

transgenerational harm these systems produce.11

18. Securing the right to health is necessary for the enjoyment of a range of other rights.

In contexts of confinement and deprivation of liberty, violations of the right to health

interfere with fair trial guarantees, the prohibition of arbitrary detention and of torture and

other forms of cruel, inhuman or degrading treatment, and the enjoyment of the right to life.

Violations of the right to health emerge as both causes and consequences of confinement

and deprivation of liberty.

19. The Special Rapporteur highlights five ways in which the links between the right to

health and confinement and deprivation of liberty are evident:

(a) Failure to secure the right to health in early childhood through a

comprehensive system of health care contributes to inequalities, poverty, discrimination

and poor health in adulthood, feeding facilities of detention and confinement. The vast

majority of people in closed settings come from marginalized and low-income communities;

(b) Punitive legal frameworks and public policies that make incarceration likelier

hinder the realization of the right to health. Such frameworks and policies include laws

criminalizing certain behaviours, identities or status (sex work, sexual orientation, gender

identity, drug use, HIV status, non-adherence to tuberculosis treatment and exposure to

infectious diseases) and health services needed only by women (i.e., abortion); the selective

enforcement of loitering, vagabond and public disorder laws against those living in

marginalized situations; and prohibitionist drug laws and policies that produce, inter alia,

violent illicit drug markets and that lead to incarceration, driving people who use drugs

away from community health care while providing little for health care inside prisons.

11 Bruce Western and Becky Pettit, “Incarceration & social inequality”, Daedalus (summer, 2010).

Broad and sweeping public-health frameworks established by law limit the toolbox

available to policymakers for addressing health challenges, making detention and

confinement the dominant and most restrictive means for addressing health concerns that

are, according to evidence, better responded to in supportive community environments;

(c) The dominance of detention and confinement as a response to issues of

public safety and public health has led to a monopolization of resources that should be

redistributed to support the progressive development of robust health-care systems, safe and

supportive schools, programmes to support healthy relationships, access to development

opportunities and an environment free from violence;

(d) Safeguarding the right to health once a person is incarcerated is a challenging

task. Prison itself becomes a determinant of poor health as a result of poor conditions of

detention, the provision of health care under surveillance and/or a lack of access to health

care, the enormous psychosocial pain and hopelessness linked to being deprived of liberty,

and untreated pre-existing health conditions attributable to the conditions of living in

poverty.12 Mortality rates are high; in many cases, suicides and premature deaths in custody,

almost all preventable, conclude harrowing tales of lives cut short;

(e) Detention and confinement among young, low-income families who have lost

breadwinners and primary care providers to incarceration have a devastating impact on the

social fabric of communities. Upon release, people commonly receive no health-care

support when reintegrating into society. Furthermore, without robust health-care systems in

the community, deinstitutionalization may lead to tragedy.13 Criminal records, post-release

surveillance and commitment orders follow individuals into their political, social and

working lives, lowering resilience, creating barriers to opportunity and integration and

ultimately undermining the right to health.

20. In sum, the enjoyment of the right to health in the context of confinement and

deprivation of liberty is conspicuous by its absence.

B. Right-to-health framework

21. Human rights standards aimed at safeguarding persons deprived of liberty, or in

confinement, against violations of their rights exist. However, the specificity of the

normative scope and a lack of political will restrict the scope of responses to this highly

complex social phenomena. A structural assessment, from a right-to-health perspective, of

the “climate” of prison, detention and confinement, that is, how people experience life and

survive once inside, how power is structured and organized and the structural factors that

enable practices and institutions to persist, would help to broaden such responses.14

Obligations of the State

22. Under article 12 of the International Covenant on Economic, Social and Cultural

Rights, States have the obligation to respect, protect and fulfil the right of everyone to the

enjoyment of the highest attainable standard of physical and mental health. The Committee

on Economic, Social and Cultural Rights has stated that, under the same article, States are

obligated to refrain from denying or limiting equal access for all persons, including

prisoners or detainees, to preventive, curative and palliative health services. 15 Other

12 Dora M. Dumont and others, “Public health and the epidemic of incarceration”, Annual Review of

Public Health, vol. 33 (April 2012), and Ernest Drucker, A Plague of Prisons: The Epidemiology of

Mass Incarceration in America (New York, New Press, 2013).

13 See, for example, the joint urgent appeal, dated 28 November 2016 addressed to the Permanent

Mission of South Africa to the United Nations Office and other international organizations in Geneva.

Available from

https://spcommreports.ohchr.org/TMResultsBase/DownLoadPublicCommunicationFile?gId=22868.

14 Tomas Max Martin, Andrew M. Jefferson and Mahuya Bandyopadhyay, “Sensing prison climates:

governance, survival and transition”, Focaal, No. 68 (2014).

15 See general comment No. 14 (2000) on the right to the highest attainable standard of health, para. 34.

international human rights treaties also contain provisions to protect the right to health of

specific groups, including persons in situations of deprivation of liberty and confinement.

23. The Standard Minimum Rules for the Treatment of Prisoners (the Nelson Mandela

Rules) include provisions on the responsibility of States regarding health care for persons

detained in prisons (rules 24–35). For example, States have the obligation to ensure that

medical services in prisons guarantee continuity of treatment and care, including for HIV

infection, tuberculosis and other infectious diseases, and drug dependence. Also set out in

the Rules is the obligation to transfer prisoners requiring specialized treatment to

specialized institutions or civil hospitals, and to ensure that clinical decisions are taken

solely by responsible health-care professionals and not overruled or ignored by non-medical

prison staff.

24. Bearing in mind the goal of the progressive realization of the right to health,

measures are needed to ensure its realization in closed settings, including a plan to end

forced confinement in hospitals and long-term care institutions. Such a plan must be

supported by strategies to strengthen community-based alternatives.16

Informed consent17

25. The right to informed consent is a fundamental element of the right to physical and

mental health. Informed consent involves a voluntary and sufficiently informed decision,

and serves to promote a person’s autonomy, self-determination, bodily integrity and well-

being. It encompasses the right to consent to, refuse or choose an alternative medical

treatment.18

26. While the right to consent to and refuse treatment involves careful consideration in

the context of life-saving procedures, it must otherwise be respected, protected and fulfilled,

notably in cases of isolation and confinement, where support and encouragement must be

provided so that treatment is completed voluntarily. However, the right to consent to

treatment continues to be ambiguously applied among those deprived of liberty, who

remain at a high risk of being subjected to coercive, involuntary or mandatory testing and

treatment, including compulsory drug testing, research trials and, among hunger strikers,

force-feeding; in other cases, organs have been removed from executed prisoners without

prior consent. These types of practices are harmful and some have implications on the

reporting of symptoms for testing and treatment of stigmatized infections, such as HIV

infection and tuberculosis.

Equality and non-discrimination

27. Entrenched inequalities and discrimination characterize the experience of

deprivation of liberty and confinement, from the discriminatory apprehension of persons to

the discriminatory and inequitable arrangement of services once a person is deprived of

liberty or confined.

28. Health and prison officials often perpetuate discrimination through the denial of

health care, including opioid substitution therapy, clean needles and syringes, antiretroviral

therapy, and sexual health supplies or contraceptives. The status of being incarcerated can

elicit prejudicial action by prison and health officials. Those seeking health care in prisons,

detention centres and settings of confinement, particularly those with serious health issues,

are often denied access as a form of informal punishment; access has also been denied

where they are wrongly deemed to lack legal capacity on the basis of a perceived or actual

impairment or other reasons. Barriers to ensuring non-discriminatory access to health care,

including health-care facilities that are independently regulated outside the penal system,

must be addressed immediately. The failures of staff training in this regard demonstrate the

need for alternative and assertive approaches.

16 A/HRC/35/21.

17 For more on the issue of informed consent, see A/64/272, paras. 9, 28, 34 and 79–84.

18 Ibid., para. 10.

International cooperation and assistance

29. International human rights treaties recognize the obligation of international

cooperation, which includes cooperation regarding the right to health. International

cooperation linked to the realization of a wide range of rights is also recognized in

Sustainable Development Goal 17. Higher-income States have a particular responsibility to

provide assistance in the area of the right to health, including as it relates to adequate access

to health care in prisons and other settings of detention and confinement. International

assistance should not support prison and health systems that are discriminatory or where

violence, torture and other human rights violations occur. This is particularly so in the cases

of drug detention centres, large psychiatric institutions and other long-term segregated care

institutions.19

30. Through international cooperation, support for community-based health

interventions should be scaled up to effectively safeguard individuals from discriminatory,

arbitrary, excessive or inappropriate deprivation of liberty and confinement. It is worrying

to see the continued imbalance between multilateral and bilateral assistance provided for

the administration of justice and that provided for rights-based community investment.

More work is needed to better understand the full scope of projects that continue to fund

closed settings and impede community-based investment in health and social welfare.

Underlying determinants of health

31. Various factors affect the physical environment of persons who are deprived of

liberty or confined. Adverse conditions can include poor sanitation and poor access to

nutritional food, fresh air and potable drinking water. Some facilities were constructed on

land contaminated with carcinogens.20

32. In these settings, including but not restricted to prisons, violence is common and

takes many forms, including physical and sexual abuse by staff and peers, the use of

physical and chemical restraints, forced medical treatment and solitary confinement.

Furthermore, sexual violence against women has shown in multiple cases to be systematic

and widespread. The most silent forms of adverse conditions of detention and confinement,

including boredom and powerlessness, can often prove to be the most severe, notably

affecting mental health while giving rise to feelings of hopelessness and despair and suicide

attempts.

33. Overall, centres of detention or confinement are not therapeutic environments. In a

previous report, the Special Rapporteur identified the underlying determinants of the right

to mental health, including the creation and maintenance of non-violent, respectful and

healthy relationships in families, communities and society at large. 21 In detention or

confinement, where the person is surrounded by staff tasked with restricting freedom, it is

difficult to establish these type of relationships, which hinder the full and effective

realization of the right to mental health.22 Even with noble efforts to establish a strong

culture of respect and care, violence and humiliation usually prevails, adversely affecting

the development of healthy relationships.

Health care

34. As elsewhere, for the right to health to be enjoyed in detention centres, health-care

facilities, goods and services must be available, accessible, acceptable and of good quality.

35. Even with the most comprehensive health system in place, structural barriers may

impede the full and effective realization of the right to health. Centres of detention and

19 A/65/255, A/HRC/35/21.

20 Judah Schept, “Sunk capital, sinking prisons, stinking landfills: landscape, ideology and the carceral

state in Central Appalachia”, in Michelle Brown and Eamonn Carrabine (eds.), Routledge Handbook

of Visual Criminology (New York, Routledge, 2017).

21 A/HRC/35/21.

22 Peter Stastny, “Involuntary psychiatric interventions: a breach of the Hippocratic oath?” Ethical

Human Sciences and Services, vol. 2, No. 1 (spring, 2000).

confinement often concentrate people from the most vulnerable situations, including those

who are medically vulnerable. The centres are often characterized by inhumane physical

and psychosocial environments and unequal structures of power frequently rooted within

racist and violent pasts. The unpopularity and powerlessness of those deprived of liberty

and confined leave them with no voice and few defenders to advocate for their dignity.

These factors shape an ecology of deprivation that significantly compromises the ethical

and effective organization and delivery of health care.

36. The availability of health-care services in detention and confinement centres is often

compromised by managerial procurement decisions, particularly when those services are

segregated from mainstream public-health infrastructure. Decisions to not make available

certain health-care services are often taken by penal-oriented administrators instead of

independent public-health actors, and security and punishment eclipse concerns for health.

In many low-income settings, prison health systems lack the resources necessary to ensure

the most basic provisions of health care.

37. In such settings, the accessibility of available health-care services is often dependent

on negotiations with staff tasked with control and containment. Many people are denied

access to appropriate medical services because of punitive or negligent actions of security

staff. This has led to egregious violations of human rights, including preventable deaths.

38. In terms of acceptability, health-care services must: respect human rights and

medical ethics; be culturally appropriate, sensitive to gender and life-cycle requirements

and designed to respect confidentiality; and improve the health status of those concerned.

Services in settings of confinement and deprivation of liberty must be culturally appropriate,

as well as acceptable to adolescents, women, older persons, persons with disabilities,

indigenous persons, minorities and lesbian, gay, bisexual, transgender and intersex persons.

39. As regards quality, evidence-based health-care protocols and practices must be used

to support people who are deprived of liberty or confined, the majority of whom, because of

their structural situation of disadvantage, will require significant provision of quality

physical and mental health care. However, the delivery of such services faces systemic

obstacles. The climate of deprivation and control adversely affects relationships,

undermining the quality of health care. The absence of resources, particularly in low-

income settings, further exacerbates this environment. The inappropriate use or

overprescription of psychotropic medications, common in prisons as a means of behaviour

control, and the use of solitary confinement, isolation and forced medical treatment are

issues of quality of care and do not promote and protect the right to health. In higher-

resource prison settings, cognitive-behavioural and other behaviour modification

programmes raise serious questions of quality. Such programmes perpetuate individualistic

approaches to offending as “abnormal”, masking the political and social contexts that shape

the lives and choices of those who have been detained or confined.

Participation

40. The effective realization of the right to health requires the participation of everyone,

including those deprived of liberty or confined, or most at risk, in decision-making at the

legal, policy and community levels, in particular in the area of health care. At the

population level, enabling everyone to participate meaningfully in decisions about their

right to health requires inclusive engagement, such as with those currently and formerly

deprived of liberty and confined, their families, police, prison administrators, medical

professionals, social workers, penal reformers and abolitionists and the wider community.

41. Health-care services in closed settings must empower users as rights holders to

exercise autonomy and participate meaningfully and actively in all matters concerning them

and to make their own choices about their health, with appropriate support where needed.

42. The inclusion of the voices of those directly affected must be encouraged, although

this remains complicated owing to deeply unequal penal and medical power dynamics.

Prisoner-led trade unions, voting rights movements and documentation projects, and

movements of users and survivors of mental health systems, as well as the inclusive

engagement of academia and the non-governmental sector, are powerful means for

promoting meaningful participation.

Accountability

43. Accountability for the realization of the right to health requires three elements:

monitoring; review, including by judicial, quasi-judicial and political or administrative

bodies and social accountability mechanisms; and remedies and redress. Accountability is

vital if the right to health inside prisons and other confinement settings is to be realized in

practice.

44. Despite the commendable efforts of several monitoring mechanisms, human rights

violations in prison and other centres of detention and confinement continue to be

committed with impunity in a widespread and systematic manner. Individuals held in such

centres often have limited or no access to independent accountability mechanisms,

frequently because no monitoring body exists. Mechanisms charged with monitoring

centres of deprivation of liberty rarely consider structural barriers, such as the

disproportional detention of people in situations of vulnerability, including medical

vulnerability, the existence of unequal power structures, often rooted in racist and violent

pasts, and the little to no access to channels through which to voice demands, including

health-care related demands.

45. The Special Rapporteur encourages national human rights institutions and national

preventive mechanisms to give attention to those structural challenges. A right-to-health

approach can be a useful tool in their monitoring and promotion functions. Persons

formerly or currently deprived of liberty or confined, their families and civil society should

be engaged in the development and implementation of accountability arrangements.

III. Relationship between mental health and forced confinement and deprivation of liberty

46. Actual and de facto deprivation of liberty has adverse effects on mental health,

which may amount to violations of the right to health. Solitary confinement and protracted

or indefinite detainment, including decades of detention in prisons or other closed settings,

negatively influence mental health and well-being. The rates of poor mental health in

prisons worldwide far exceed the rates in the general population. Being deprived of liberty

itself is an emotionally fraught experience, carrying with it potential exposure to inhumane

and crowded conditions, violence and abuse, separation from family and community, the

loss of autonomy and control over daily living and an environment of fear and humiliation,

and the absence of constructive, stimulating activities. Suicide rates in prisons are at least

three times higher than those in the general community.23

47. While there has been a surge in research on mental health in prisons, it has been

mostly limited to academic psychiatry and focused on disease prevalence and on improving

services during confinement. There remains a dearth of research on how the constraints of a

closed environment itself, particularly a punitive one, presents significant obstacles to the

delivery of quality health care to those who are most in need.

48. Apart from recognizing that many people who are currently detained or confined

should not be, there is an emerging consensus that prisons are not conducive to effective

mental health treatment and that they are not the place for people identified as having a

mental condition. This view, however, has led to forced confinement in mental health

facilities, sometimes for indefinite periods, without meaningful safeguards to protect the

right to health, to build on recovery or to guard against arbitrariness. For example, persons

with intellectual and psychosocial disabilities who are in conflict with the law and who are

deemed incapable of forming a rational judgment about their conduct (“insanity” defence)

end up being held in custody in medical or security facilities instead.

49. The Convention on the Rights of Persons with Disabilities includes relevant

provisions in this connection (arts. 12 and 14). The Committee on the Rights of Persons

with Disabilities has established that the provisions represent an absolute prohibition on

23 Seena Fazel and Jacques Baillargeon, “The health of prisoners”, The Lancet, vol. 377 (2010).

involuntary confinement, including involuntary commitment of persons with intellectual

and psychosocial disabilities to mental health facilities, strictly on the basis of actual or

perceived impairment, as such confinement carries with it the denial of the person’s legal

capacity to decide about care, treatment, and admission to a hospital or institution.24

50. In accordance with the above-mentioned Convention, the recognition of legal

capacity, including of persons with intellectual and psychosocial disabilities, applies to all

aspects of life, including for the purposes of equal standing in courts and tribunals. In this

regard, the Committee has recognized that if persons with disabilities, including intellectual

and psychosocial disabilities, in conflict with law are deprived of liberty through a lawful

and non-arbitrary process, they must be provided with reasonable accommodation that

preserves their dignity, including in prison.25

51. The Special Rapporteur acknowledges these provisions. He echoes his previous call

for a paradigm shift in the field of mental health, which abandons outdated measures

resulting in the forced confinement of persons with intellectual and psychosocial disabilities

in psychiatric institutions. He calls on States, international organizations and other

stakeholders to undertake concerted efforts to radically reduce the use of institutionalization

in mental health-care settings, with a view to eliminating such measures and institutions. He

also calls on States to provide reasonable accommodation inside prisons for persons with all

forms of disability lawfully and non-arbitrarily deprived of liberty, in a way that preserves

their dignity.

52. Foundational to the way forward is the need for serious discussion about the role

that perceptions of mental conditions play in propagating structures of confinement,

underpinned by a false dichotomy that an individual coming into conflict with the law is

either “mad” or “bad”. People in conflict with the law, including those who may have a

mental health condition, cannot be reduced to this binary categorization. The Special

Rapporteur welcomes the growing debate around the subjective labelling of individuals and

the inherent risks of diversion into coercive mental health settings. A fundamental part of

this debate must include how the “insanity” defence and other criminal justice tools, such as

mental health courts and security measures, may perpetuate systemic human rights failures

in prisons and mental health settings. Many initiatives to provide mental health services in

the community, without coercion or confinement, have shown promise. Empowerment is a

basic precondition for the recovery of many persons who struggle with critical psychosocial

challenges. Empowerment and recovery cannot happen in closed settings. Healthy,

therapeutic relationships, based on mutual trust, should be fostered between users and

providers of mental health-care services.

IV. Children deprived of liberty

53. The scale and magnitude of children’s suffering in detention and confinement call

for a global commitment to the abolition of child prisons and large care institutions

alongside scaled-up investment in community-based services.

54. The Standard Minimum Rules for the Treatment of Prisoners, the first such rules

adopted in the United Nations context, deliberately did not prescribe conditions and

protection for child detainees, because they contained the principle that young persons

should not be sentenced to imprisonment, which was repeated in the Nelson Mandela Rules.

For over 30 years, United Nations rules in respect of juvenile justice have required that

children be placed in institutions only as a measure of last resort and for the minimum

duration possible. 26 States members of the United Nations long ago committed to

depenalization and non-custodial measures for both children and adults. 27 Diverting

24 Guidelines on the right to liberty and security of persons with disabilities.

25 Ibid.

26 United Nations Standard Minimum Rules for the Administration of Juvenile Justice (“the Beijing

Rules”), rule 19.1; see also the United Nations Rules for the Protection of Juveniles Deprived of their

Liberty (“the Havana Rules”), rule 1.

27 United Nations Standard Minimum Rules for Non-custodial Measures (“the Tokyo Rules”).

children from contact with the criminal justice system is now considered part of a strategy

for ending violence against children within criminal justice settings.28 The global study on

children deprived of liberty commissioned by the Secretary-General is to include

recommendations for the implementation of that strategy.29

55. Many of the damaging characteristics of prisons that we know to critically impede

the enjoyment of the right to health by detained children, especially in terms of their

psychological and emotional development, are also evident in large institutions nominally

aimed at securing their welfare, including infant homes and education, health and welfare

facilities for children with disabilities. Additionally, penal institutions are used to

administratively detain children for political “offences”, national security and immigration

control. As such, all forms of detention severely compromise children’s enjoyment of the

rights to health, to healthy development and to maximum survival and development, in

contravention of the International Covenant on Economic, Social and Cultural Rights (art.

12) and the Convention on the Rights of the Child (arts. 6 and 24).

A. Overview

56. There are no global statistics on the total number of children deprived of their liberty.

Around one million children were estimated to be in detention in criminal justice systems at

the turn of the millennium; in some countries, the majority were awaiting trial. Many were

detained for non-criminal behaviour associated with poverty and discrimination, themselves

breaches of children’s rights. The independent expert for the United Nations study on

violence against children found violence to be widespread in penal institutions.30

57. The likelihood of being detained as a child is linked to the social determinants of

health. 31 Poverty, social exclusion, militarized school systems, gender, ethnicity and

disability are all factors associated with the loss of liberty in childhood. Children from

economically and socially disadvantaged communities, including those from ethnic

minorities and indigenous populations, as well as those in care systems, are

disproportionately deprived of liberty. Children with disabilities are more likely to be held

in institutions, and to suffer appalling violence, often in the guise of “treatment”.32 Scaled

up investment in tackling these underlying determinants of health is not only an obligation

for the progressive realization of the right to health, but a promising strategy to prevent

incarceration over the long term.

58. The Special Rapporteur has witnessed children with disabilities growing up entirely

within the forced confines of large institutions, eventually moving into social welfare

institutions for adults. While designed with good intentions, such paternalistic models are

not compliant with various provisions protecting children’s rights, including their right to

healthy development. This sad legacy of confinement begins at the start of life in infant

homes, characterized by emotional neglect that is itself a form of institutional violence. The

Special Rapporteur reiterates previous calls to fully eliminate institutional care of children

under 5 years of age and replace it with a comprehensive family support system.33 This

single measure, if taken seriously, could prevent millions from being deprived of their

liberty.

59. While the Convention on the Rights of the Child does not exclude the detention of

children, the strongest of presumptions against it are established (art. 37 (b)). Children may

be detained only as a measure of last resort. This standard is not to be used retrospectively

to justify existing structures. Instead, it is an obligation to exhaust all other strategies at the

macro level and all other interventions at the micro level.

28 See the United Nations Model Strategies and Practical Measures on the Elimination of Violence

against Children in the Field of Crime Prevention and Criminal Justice, paras. 30–31.

29 General Assembly resolution 69/157.

30 See A/61/299, paras. 61–62.

31 A/HRC/7/11 and Corr.1.

32 Paulo Sérgio Pinheiro, World Report on Violence against Children (2006), pp. 185 and 188.

33 See, for example, A/70/213.

B. Penal institutions

60. Penal institutions were designed principally for adults. At best, separate facilities are

provided for children, but they are still modelled on adult prisons. Prison is one of several

forms of immigration detention used around the world. The fundamental right of the child

to care and protection can never be realized within penal institutions.34

61. Children have been confined in cells, wards, corridors, exercise yards and visiting

areas for weeks, months or even years. Childhood is a uniquely precious time in a young

person’s development; in penal settings, fresh air, windows and opportunities to play,

exercise and explore outside are strictly limited, if available at all. A lack of nutritious and

wholesome food saps children’s energy; squalid conditions spread infection and disease.

For children in immigration detention, release from captivity prior to deportation equals the

loss of places they call home and the people linked to those places. Escorted transfers from

an institution to an aircraft robs children of any final opportunity to say goodbye.

62. The impact of penal institutions stretches far beyond the curtailment of children’s

physical freedom; their mental well-being and potential for psychological and cognitive

growth are all deeply and negatively affected. Research evidence shows that immigration

detention aggravates pre-existing trauma in children. For some it is the worst experience of

their lives.35

63. Adolescence is a critical period of cognitive and emotional development, affecting

the whole of adulthood. The Special Rapporteur remains deeply concerned about how

punitive responses to youth violence affect adolescent health and development. 36

Criminalization and incarceration have increased, despite the evidence that public-health

approaches deliver better results.37 In reality, children held in penal institutions, including

for acts of violence, are those whose early childhood needs and rights have not been

fulfilled. International human rights law requires children to be treated in accordance with

their age and best interests.38 Ensuring the full and harmonious development of children in

society, from infancy to adolescence, is a core strategy for preventing youth crime.39

64. Since the entry into force of the Convention on the Rights of the Child, neuroscience

research has revealed that the brains of adolescents are still developing in many critical

ways. This calls into serious question the rationale for punitive, closed environments and

methods of control. 40 Corporal punishment, humiliation, coercion and the denial of

supportive environments that can ensure healthy, non-violent relationships and physical

comfort can never elicit positive, long-term change in a child’s behaviour.41

65. Many children are detained due to their mother’s incarceration, when it is considered

in the child’s best interests to remain with his or her mother. The Special Rapporteur is of

the view that this is too limited as an assessment of best interests. States must weigh the

34 See the Convention on the Rights of the Child, arts. 3 (2) and 40.

35 International Detention Coalition, Captured Childhood: Introducing a New Model to Ensure the

Rights and Liberty of Refugee, Asylum Seeker and Irregular Migrant Children Affected by

Immigration Detention (2012), p. 49.

36 The Committee on the Rights of the Child expressed similar concerns; see its general comment No.

13 (2011) on the right of the child to freedom from all forms of violence, para. 15 (c).

37 Arianna Silvestri and others, Young People, Knives and Guns: A Comprehensive Review, Analysis

and Critique of Gun and Knife Crime Strategies (London, Centre for Crime and Justice Studies,

2009), pp. 61–67.

38 Convention on the Rights of the Child, arts. 3 and 37, Convention on the Rights of Persons with

Disabilities, art. 7 (2).

39 See United Nations Guidelines for the Prevention of Juvenile Delinquency (the Riyadh Guidelines),

paras. 1–6.

40 Barry Goldson and Ursula Kilkelly, “International human rights standards and child imprisonment:

potentialities and limitations”, The International Journal of Childrens Rights, vol. 21, No. 2 (2013).
 41 WHO and International Society for Prevention of Child Abuse and Neglect, Preventing Child

Maltreatment: A Guide to Taking Action and Generating Evidence (2006); Global Initiative to End

All Corporal Punishment of Children, “Corporal punishment of children: review of research on its

impact and associations”, working paper (2016).

societal interests in punishing women with incarceration, for what are most often non-

violent offences, with the best interests of the child and the obligation set out in article 37

(b) of the Convention on the Rights of the Child. That obligation requires the

implementation of all means possible to avoid the detention of the child, including

alternative models and responses for mothers.

66. The solitary confinement of children and the degrading and humiliating conditions

in detention have been described as mental violence. 42 Many other daily forms of

“organized hurt”43 are perpetrated though no less pernicious means. Children’s creativity,

communication, sleeping, waking, playing, learning, resting, socializing and relationships

are compulsively controlled in detention and transgressions punished, while those

administering the punishment enjoy impunity.

67. Daily deprivations are often complemented by behavioural interventions in order to

“treat” and “reform”. Such “treatment” approaches further entrench the idea of a troubled

child “in need of repair”, ignoring that changes are needed to address right-to-health

determinants, such as inequalities, poverty, violence and discrimination, especially among

groups in vulnerable situations. This, in turn, leads to children living in forced confinement

and fuels their struggles. Such oversimplified strategies are not in conformity with the right

to health.

68. Coping mechanisms employed by stressed and desperate children, which include

assaults against themselves and others, are perceived by society and judicial and welfare

systems as acts that are self-harming, anti-social and/or violent. The harm inflicted by

institutions themselves too often goes unacknowledged.

69. There can be no hesitation in concluding that the act of detaining children is a form

of violence. The Convention on the Rights of the Child prohibits the use of detention as a

default strategy. Looking forward, a child rights-based strategy must strengthen even

further the presumption against detention of children with a view to abolition.

V. Women, the right to health, and confinement

70. Women comprise a small minority (7 per cent) of the global prison population, but

the number of incarcerated women is increasing and at a greater rate than that of

incarcerated men.44 The number of women and young girls held outside of criminal justice

settings worldwide is unknown. Most are first-time offenders suspected of, or charged with,

minor, non-violent offences, pose no risk to the public and should probably not be in prison

at all.45 Paradoxically, the meteoric rise of women in detention regimes over the past two

decades has brought greater visibility and gender-focused reforms, but with limited

improvements as regards the suffering of detained women and the increase in their

numbers.46

71. The suffering experienced by women who are imprisoned or involuntarily confined

and the related negative impact on the enjoyment of their right to health is understood to be

significantly greater than that experienced by men. Power and authority in prisons and other

places of detention and confinement, such as large psychiatric institutions, emerge from

historical patriarchal, hyper-masculinist constructions of punishment and control. 47 The

acceptability of such environments for the realization of the right to health and for the well-

being of women is thus questionable.

42 See Committee on the Rights of the Child, general comment No. 13, para. 21.

43 Hans von Hentig, Punishment: Its Origin, Purpose and Psychology (1937); Barry Goldson, “Child

imprisonment: a case for abolition”, Youth Justice, vol. 5, No. 2 (August 2005).

44 Roy Walmsley, World Female Imprisonment List, 4th ed. (2017).

45 United Nations Office on Drugs and Crime (UNODC), Handbook on Women in Prison, 2nd ed.

(United Nations publication, Sales No. E.14.IV.3).

46 Cassandra Shaylor, “Neither kind nor gentle: the perils of ‘gender responsive justice’”, in Phil Scraton

and Jude McCulloch, eds., The Violence of Incarceration (Routledge, 2008).

47 M. Bandypadhyay, “Competing masculinities in a prison”, Men and Masculinities, vol. 9, No. 2

(2006).

72. The manner in which women are actually or de facto deprived of liberty arises from

structural inequalities and discrimination, harmful gender stereotypes and deep

disadvantage, which lead to failure to secure their rights to social and underlying

determinants of health, to reproductive autonomy, to an environment free from gender-

based violence, and to services and support in the community. Once women are inside, the

gendered and challenging environment of detention and confinement compounds their

immediate and long-term health risks, reproduces past violence and trauma, and

undermines the full and effective realization of the right to health for themselves and their

dependent children and families left on the outside.

A. Addressing the gendered pathways of incarceration

73. Studies in several countries have found that violence, sexual, physical and emotional

abuse and economic dependence are linked to women’s incarceration. Many women in

prison are mothers and the primary, if not only, caregivers for their children or other family

members. In many countries, prison sentences for women lead to the incarceration of their

infants or young children. Children left behind have limited contact with their mothers,

often struggling to cope, living in street situations, in institutions, in foster care or with

relatives.48

74. In some countries, pregnant women who use drugs, including legally prescribed

drugs, face civil or criminal detention for extended periods of time, sometimes for the

length of the pregnancy. This can have a discriminatory impact on women with disabilities

who take prescription drugs while pregnant.49 In other countries, women are imprisoned for

“moral crimes”, such as adultery or extramarital relationships, or to protect them from

gender-based violence (“honour crimes”).50

75. Criminal laws and legal provisions that restrict access to sexual and reproductive

health goods, services and information also contribute to women’s imprisonment.51 In some

States, dispensing information on preventing interrupting pregnancy or materials deemed to

conflict with notions of “morality” or “decency” is criminalized with punishments ranging

from fines to imprisonment. Criminal laws have also been used to prosecute women for

other conduct, including failure to follow a doctor’s orders during pregnancy, failing to

refrain from sexual intercourse and concealing a birth.52 Where abortion is illegal, women

may face imprisonment for seeking an abortion and emergency services for pregnancy-

related complications, including those due to miscarriages. Fear of criminal punishment for

“aiding or abetting” abortions can lead health-care providers to report people suffering from

pregnancy complications to authorities.53

76. A substantial proportion of women in prison are incarcerated for non-violent, low-

level drug offences: between 40 and 80 per cent in some countries in the Americas, Europe

and Asia.54 While men are more likely than women to be involved in the drug trade, a

48 United Nations Development Programme, Addressing the Development Dimensions of Drug Policy

(2015), p. 26; Moira O’Neil, Nathaniel Kendall-Taylor and Susan Nall Bales, “Communicating about

women and criminal justice in the United Kingdom”, FrameWorks Research Brief (June, 2015), p. 3;

Carolyne Willow, Children Behind Bars: Why the Abuse of Child Imprisonment Must End (Policy

Press, 2015).

49 Amnesty International, Criminalizing Pregnancy: Policing Pregnant Women Who Use Drugs in the

USA (2017).

50 A/68/340.

51 A/66/254, A/68/340 and A/HRC/14/20.

52 See A/66/254, paras. 18, 38 and 62.

53 See, for example, CEDAW/C/SLV/CO/8-9, paras. 37–38.

54 See A/68/340, paras. 23–24; Rebecca Schleifer and Luciana Pol, “International guidelines on human

rights and drug control: a tool for securing women’s rights in drug control policy”, Health and

Human Rights Journal, vol. 19, No. 1 (2017); Thailand Institute of Justice, Women Prisoners and

the Implementation of the Bangkok Rules in Thailand (2014).

significantly higher proportion of women than men are imprisoned for drug-related

offences.55

77. In many countries, the proportion of women held in pretrial detention is equal to or

larger than that of convicted female prisoners. 56 This heightens vulnerability to sexual

abuse and other forms of coercion that can be used to extract confessions 57 and is

compounded by race, disability, foreign national status and other situations of social

discrimination.

78. Keeping women out of the criminal justice system in the first place by, for example,

repealing laws criminalizing access to, and information about, sexual and reproductive

health-care services, consensual adult sex, “morality” and minor drug offences is critical to

protecting the right to health.

B. Conditions of incarceration

79. Once incarcerated, women often face discrimination based on sex and/or disability

and are subjected to treatment and conditions that mirror the violence and abuse the

majority have experienced prior to their detention. In a number of countries, because of the

limited accommodation available for women prisoners, women are subjected to security

levels not justified by the risk assessment undertaken on admission.58 The lack of available

medical or mental health services may also result in women being placed in more secure

facilities than otherwise indicated. 59 The situation is exacerbated for women with

disabilities because of the scarcity of facilities to accommodate them, and even more so for

women with psychosocial or intellectual disabilities, whose actual or perceived impairment

is often used as the basis for higher levels of security.60

80. Like their male counterparts, women in prisons recurrently face overcrowding,

violence and unsanitary conditions detrimental to their mental and physical health and

conducive to the spread of disease. It is frequently the case that little or no attention is paid

to women-specific health-care needs, such as those related to menstruation, pregnancy and

childbirth, menopause and sexual and reproductive health.61 The lack of gender-specific

health care in prison, including the lack of specialized obstetric and reproductive health

services, poor treatment by staff, medical neglect and denial of medicines, lack of privacy

for medical exams and confidentiality, and discrimination regarding access to harm

reduction services, may amount to ill-treatment or in some cases torture,62 and amounts to a

violation of the right to health.

81. International standards require “special accommodation for all necessary prenatal

and postnatal care and treatment” in women’s prisons,63 and that “adequate and timely food”

and a healthy environment be provided free of charge for, among others, pregnant women

and breastfeeding mothers.64 However, prenatal care is inadequate or non-existent in many

prisons, even where widely available in the general population, and nutrition substandard.65

55 Joanne Csete and others, “Public health and international drug policy”, The Lancet, vol. 387 (April

2016); A/68/340, para. 26; CEDAW/C/BRA/CO/7 and Corr.1, para. 32; A/54/38/Rev.1, part two,

para. 312.

56 UNODC, Handbook on Women and Imprisonment.

57 Open Society Justice Initiative, Presumption of Guilt: The Global Overuse of Pretrial Detention

(New York, Open Society Foundations, 2014); UNODC, Handbook on Women and Imprisonment.

58 UNODC, Handbook on Women and Imprisonment.

59 See, for example, Anti-Discrimination Commission Queensland, Women in Prison (2006). Available

from https://www.adcq.qld.gov.au/__data/assets/pdf_file/0018/5148/WIP_report.pdf.

60 UNODC, Handbook on Women and Imprisonment.

61 A/68/340. See also Human Rights Watch, Going to the Toilet When You Want: Sanitation as a

Human Right (2017).

62 See A/HRC/31/57, para. 26.

63 The Nelson Mandela Rules, rule 28.

64 United Nations Rules for the Treatment of Women Prisoners and Non-custodial Measures for Women

Offenders (the Bangkok Rules), rule 48.

65 A/68/340.

Mistreatment of women during childbirth has been reported in prisons and immigration

detention centres. Punishment by closed confinement and disciplinary segregation should

not be applied to pregnant women, women with infants and breastfeeding mothers.66

C. Women with disabilities

82. Women with disabilities, especially psychosocial disabilities, are disproportionately

represented in prisons, both as compared to the general population and vis-à-vis male

prisoners.67 The closure of psychiatric institutions and the lack of adequate housing, mental

health and social services in communities have contributed to the increase in the population

of women with psychosocial disabilities in prison. 68 The medicalization of women’s

behaviour and the construction of women in conflict with the law as “mad”, “irrational” and

“in need of repair” has contributed to the labelling of women in prison as having mental

health conditions where men would not have been, and in turn, to the over-prescription of

psychotropic medications for women suffering from normal levels of distress associated

with detention.

83. Many prisons fail to provide reasonable accommodation to people with disabilities,

which has significant consequences on their enjoyment of the right to health and, in some

cases, may violate prohibitions against torture and ill-treatment.69 The misclassification of

women with mental disabilities as higher risk also impede their chances of early release,

exacerbating existing mental health conditions.

84. The story of how women end up actually or de facto deprived of liberty, and the

high levels of violence and suffering they experience once inside detention facilities, is

closely linked to failures to respect, protect and fulfil their right to health. Gender-

responsive reforms have failed to effectively address these challenges, which

disproportionally affect women in vulnerable, disadvantaged and marginalized situations.

VI. From confinement to community: ending public-health detention

85. Confinement has long constituted a public-health strategy to stem the spread of

infectious diseases and viruses, including leprosy, HIV and tuberculosis. Various legal

frameworks, including national mental health laws, legitimize forced confinement on broad

and subjective grounds, including medical necessity and dangerousness. Routinely, and in

some cases increasingly, confinement is the policy instrument of choice for addressing

complex social and public-health issues. Guided by worst-case scenarios, policies and

practices regularly have a significant impact on groups in marginalized situations,

entrapping them in criminal or public-health detention regimes on the basis of a health

condition. This is despite mounting evidence that health outcomes for these groups, and for

the communities in which they live, are better with health care and support in community

settings. The place of public-health detention in our rapidly changing global world is a

topical and important debate. In the light of the upcoming high-level meeting on the fight

66 The Bangkok Rules, rule 22.

67 United States of America, Department of Justice, “Disabilities among prison and jail inmates, 2011–

12” (2015); Janet I. Warren and others, “Personality disorders and violence among female prison

inmates”, Journal of the American Academy of Psychiatry and the Law, vol. 30 (2002); Emma Plugge,

Nicola Douglas and Ray Fitzpatrick, The Health of Women in Prison: Study Findings (University of

Oxford, 2006).

68 Jennifer M. Kilty, “‘It’s like they don’t want you to get better’: Psy control of women in the carceral

context”, Feminism & Psychology, vol. 22, No. 2 (April 2012).

69 European Court of Human Rights, Price v. the United Kingdom, application No. 33394/96, judgment

of 10 July 2001, and D.G. v. Poland, application No. 45705/07, judgment of 12 February 2013;

United States Court of Appeals, Sixth Circuit, Stoudemire v. Michigan Department of Corrections et

al., case No. 14-1742, decision of 22 May 2015.

against tuberculosis, to be held pursuant to General Assembly resolution 71/159, in the

present chapter the Special Rapporteur will focus on the illustrative case of tuberculosis.

86. Few populations experience more risk factors for tuberculosis than people deprived

of liberty, owing to factors ranging from poor nutrition and unhygienic conditions to poor

medical care. Prevalence rates in prisons are 3 to 1,000 times higher than those among the

general population; prison populations account for 25 per cent of the tuberculosis burden in

some countries.70

87. Rights violations contributing to the spread of tuberculosis result not only from the

conditions of detention, but also from punitive responses to this and other infectious

diseases, including criminalization, isolation, coercion and forced hospitalization. Too often,

today’s approaches to tuberculosis are as archaic as the disease itself and lack a modern,

community-based approach to secure the right to health and better address the disease.

Realization of the right to health requires a full commitment to developing responses to

tuberculosis in the community, moving towards the full elimination of the use of punitive

measures, including confinement, as a response.

A. Criminalization as a determinant of the right to health for people living

with tuberculosis

88. Incarceration and detention approaches not only impede the realization of the rights

to health, to informed consent, to privacy and to freedom from treatment, from inhuman

and degrading treatment and of movement, but can also worsen social inequalities and lead

to a paradoxical increase in tuberculosis incidence.71

89. In some countries, national laws permit mandatory hospitalization and forced

treatment for persons with tuberculosis, in contravention of the right to informed consent,

further creating fear and stigmatization of both the disease and people suffering from it.

This drives people with tuberculosis symptoms away from the needed health care. Certain

laws explicitly provide that examinations, hospitalization and observation may be carried

out, isolation may be imposed and medical treatment may be provided without consent, in

some cases without a court order. Some countries have tuberculosis-specific laws that

include stigmatizing language, for example suggesting that people with the disease

maliciously evade treatment, and authorize non-consensual hospitalization. Such legal

frameworks reflect outdated approaches to health care, including approaches in which the

amount of funding a health facility receives is determined by the number of occupied

hospital beds.

90. People who are deprived of liberty disproportionately come from groups in

disadvantaged situations who often have inadequate access to health-care services. Placing

them in closed settings increases the risk that they will not have access to health care and

can lead to the spread of tuberculosis where prison conditions, including overcrowding,

poorly ventilated spaces, inadequate prevention, medical care and treatment, stress,

malnutrition and denial of harm reduction services, elevate the risk of infection and

transmission,72 as does the high HIV rate in prisons.73 People in detention often do not have

adequate access to counselling and information about medicine and the side effects of

treatment. Lack of access to quality diagnostic tools and medicines further contribute to

70 See www.who.int/tb/areas-of-work/population-groups/prisons-facts/en/; F. Biadglegne, A. Rodloff

and U. Sack, “Review of the prevalence and drug resistance of tuberculosis in prisons: a hidden

epidemic”, Epidemiology & Infection, vol. 143, No. 5 (April 2015).

71 G. Mburu and others, “Detention of people lost to follow-up on TB treatment in Kenya: The need for

human rights-based alternatives”, Health and Human Rights Journal, vol. 18, No. 1 (2016), abstract.

72 Masoud Dara, Dato Chorgoliani and Pierpaolo de Colombani, “TB prevention and control care in

prisons”. Available from https://pdfs.semanticscholar.org/c9d4/e241b8d4204108df36c16ad4e7

cea4d8e56f.pdf.

73 Stop TB Partnership, Key Populations Brief: Prisoners. Available from

www.stoptb.org/assets/documents/resources/publications/acsm/KPBrief_Prisoners_ENG_WEB.pdf.

prisons as tuberculosis incubators, with as few as 18 per cent of prisons in high-burden

tuberculosis countries having access to such tools.74

91. Excessive hospitalization, in some cases in prison-like hospital conditions for

multidrug-resistant (MDR) and extensively-drug resistant (XDR) tuberculosis, is also an

issue of concern. Many countries default to isolation, particularly in the context of such

drug-resistant strains of tuberculosis. This results in fear and mistrust in public-health

systems and inadequately supports the realization of the right to health of people with

tuberculosis. Prolonged isolation, used for lengthy treatment of such drug-resistant

tuberculosis, has also shown to induce feelings of fear, anger, self-blame, depression and

suicide; there have been similar findings among incarcerated individuals. 75 This is

unsurprising, as persons with the disease perceive prolonged isolation as imprisonment.

B. Community-based care and tuberculosis

92. WHO recognizes that community-based care can achieve results comparable to

those of hospitalization and may result in decreased nosocomial spread of tuberculosis, and

emphasizes that community-based care should always be considered before isolation. 76

Forced isolation is unethical and is not in conformity with the right to health.

93. Despite the evidence, and ethical and rights-based considerations, some criminal

laws provide for confinement and punitive practices as part of national responses to

tuberculosis. While these may be perceived as “public-health” measures to stem the spread

of the disease, they entail significant human rights violations and further harm public health,

undermining efforts to effectively address the disease. Rather than relying heavily on

confinement, a rights-based approach calls for the development of well-resourced

community health-care options, ensuring that persons with tuberculosis have adequate

information, nutritional support and income and other support while undergoing treatment

and/or if tuberculosis results in a loss of employment. While underresourced, small-scale,

innovative, community-based treatment models have proven extremely effective, with high

treatment completion and cure rates.77

94. Confinement as a response to tuberculosis increases stigmatization of people with

the disease, driving those most at risk underground and away from health care. Confining

people with tuberculosis not only puts them at risk by placing them in settings often

characterized by inadequate access to treatment and support, but also fuels the spread of the

disease within these settings. As a particularly stark example, incarceration has been

utilized to isolate persons with tuberculosis, punishing them for not adhering to the

treatment, even though violations of the right to health led to their non-adherence in the

first place. Confinement inappropriately places the burden of tuberculosis treatment and

care on the person, effectively isolating and criminalizing those who are sick instead of

providing the health care and support needed to complete treatment. These practices must

be brought to an end.

VII. Conclusions and recommendations

95. Deprivation of liberty and confinement, when they are used as widespread

forms of addressing various social, and often non-criminal, issues, create an

environment that is detrimental to the enjoyment of the right to physical and mental

74 Banuru Muralidhara Prasad and others, “Status of tuberculosis services in Indian prisons”,

International Journal of Infectious Diseases, vol. 56 (2017).

75 Kingsley Lezor Bieh, Ralf Weigel and Helen Smith, “Hospitalized care for MDR-TB in Port Harcourt,

Nigeria: a qualitative study”, BMC Infectious Diseases (2017).

76 WHO, Guidelines on Ethics of Tuberculosis Prevention, Care and Control (2010), pp. 11–12.

77 See, for example, WHO, Regional Office for Europe, Good Practices in Strengthening Health

Systems for the Prevention and Care of Tuberculosis and Drug-resistant Tuberculosis (Copenhagen,

2016). Available from www.euro.who.int/__data/assets/pdf_file/0010/298198/Good-practices-

strengthening-HS-prevention-care-TBC-and-drug-resistant-TBC.pdf.

health. While reality is such that certain cases of imprisonment may always be

justified, it is unacceptable that in the twenty-first century detention and confinement

continues to be regularly used for minor offences and for addressing public-health

issues.

96. It is unacceptable that States continue to use detention and confinement as a

preferred tool to promote public safety, morals and public health, doing more harm

than good to social justice, public health and the realization of the right to physical

and mental health.

97. Sustainable Development Goal 3 on ensuring healthy lives and promoting well-

being for all at all ages will not be reached if the global community neglects to

seriously address the use of detention and confinement as a public-health policy and to

prioritize the development of effective alternatives. This retains its importance at all

stages of life, starting in early childhood, moving through adolescence and youth and

providing opportunities for healthy and dignified aging in community-based settings.

98. The Special Rapporteur urges States to:

(a) Fully abide by, and implement, the Nelson Mandela Rules, in particular

as regards the provision of health care in prisons;

(b) Redistribute funds that currently support detention and confinement on

the basis of public safety and public health towards enhancing public-health systems

that include safe and supportive schools, programmes to support healthy relationships,

access to development opportunities and an environment free from violence;

(c) Develop measures to address, on a non-discriminatory basis, the barriers

faced by people in prison and other settings of detention and confinement in gaining

access to health care, particularly women, children, drug users, persons with

disabilities and persons with tuberculosis;

(d) Enhance community-based facilities that empower and promote

recovery and healthy relationships, while radically reducing and progressively

eliminating non-consensual measures and institutionalization in mental health-care

settings;

(e) Effectively provide reasonable accommodation for imprisoned persons

with disabilities, particularly those with psychosocial or intellectual disabilities;

(f) Implement national strategies towards depenalization and non-custodial

measures for children in conflict with the law or who are already imprisoned;

(g) Fully eliminate institutional care of children under 5 years of age and

replace it with a comprehensive family-support system;

(h) Scale up investment to deinstitutionalize children of all ages confined on

health or social-welfare grounds in large institutions, such as infant homes and closed

social care and mental health facilities, particularly children from vulnerable groups,

including ethnic minorities and indigenous populations, and children with disabilities;

(i) Implement policies and specific measures to avoid by all means the

detention of children, including the development of alternative models and responses

for incarcerated mothers;

(j) Repeal laws criminalizing access to, and information about, sexual and

reproductive health-care services, including with regard to the prevention and

termination of pregnancy and consensual adult sex;

(k) Effectively provide special accommodation for prenatal and postnatal

care and treatment in prisons and detention centres, jointly with adequate and timely

food and a healthy environment, free of charge, for pregnant women and

breastfeeding mothers, in accordance with the Bangkok Rules;

(l) End the criminalization, incarceration and confinement of persons with

tuberculosis as a public-health measure, while developing community-based services

that ensure access to adequate information, nutritional support and income;

(m) Implement measures to empower detained and confined persons to

exercise meaningful autonomy and participate in health-care decisions, with

appropriate support and accommodation where needed;

(n) Promote the participation of formerly or currently detained or confined

persons and their families and civil society in accountability arrangements, while

developing strategies within national human rights institutions and national

preventive mechanisms for the inclusion of a right-to-health approach in monitoring

and promotion functions.

99. The Special Rapporteur calls on the international community to scale up

support for community-based interventions that effectively safeguard individuals

from discriminatory, arbitrary, excessive or inappropriate confinement.

100. The Special Rapporteur urges other relevant stakeholders to include in debates

on mental health the issue of the insanity defence and of other criminal justice tools,

such as mental health courts and security measures, considering how they may

reinforce systemic human rights failures in prisons and mental health settings.